May 1, 2009

2009 05 01 A Photo Attempt

Representing disability is a challenge; representing cognitive or developmental disability may be more so. Here's an image from a series of bulletin boards, created in late 2007 by the NYU Child Study Center. Designed as ransom notes, they were created as a public awareness campaign about various childhood neurological conditions, including the autism spectrum.

But the dramatic presentation, and the perceived negativity in their description of these conditions, backfired immediately. The outcry from autism advocacy groups was swift and loud; the conflict was sufficient to produce articles in the New York Times, the Washington Post, and the Wall Street Journal. The boards were pulled in less than three weeks of their debut. Here's a chronicle of the entire debacle.

a ransom-style note reads: "We have your son. We are destroying his ability for social interaction and driving into a life of complete isolation. It's up to you now." Signed, Asperger Syndrome

Another ransom style note reads: "We have your son. We will make sure he will not be able to care for himself or interact socially as long as he lives. This is ony the beginning." signed Autism

I keep thinking about how one would create an awareness campaign that more people would get behind. My friend Jennifer Olson, an L.A. museum educator, and I are working on a proposal for a curatorial project: to collect existing images of disability from all over the world, and to commission new images that better represent self-advocates and their own ideas about disabledness—what it is, and what it isn't.

We'd ultimately like to build a collection that would go to the Center for the Study of Political Graphics, also in Los Angeles, for future study and use. Email me if you come across suitable images!